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CYSTIC FIBROSIS

  • About me and what CF is - The definition of Cystic Fibrosis.
  • About TOBI and the Management of Cystic Fibrosis - Information on Tobramycin Solution for Inhalation (TOBI) for pseudomonas infection, by pharmaceutical agency.
  • AFLM French Cystic Fibrosis Association - News on the cystic fibrosis, the association and its members, initiatives, the information about school, physiotherapy, home aid.
  • Ask NOAH About: Cystic Fibrosis
  • Burke's Journey - Chronicles the travels of a teddy bear touring North America to create awareness of the fight against Cystic Fibrosis and generate support for CF research. Factual content - updated weekly.
  • Camp Funshine - Summer Camp for children with Cystic Fibrosis. It is held one week each year and is one of the best ways to have fun and learn more about living with CF.
  • Canadian Cystic Fibrosis Foundation - Support and resources. Located in Toronto, Ontario.
  • CCFF Brochure - Guide to Equipment used in the treatment of Cystic Fibrosis.
  • CCFF Sudbury Chapter - Website of the Canadian Cystic Fibrosis Foundation Sudbury Chapter. Provides information on local events and information about Cystic Fibrosis.
  • CF Advantage - The mutation that causes deadly cystic fibrosis has survived for 52,000 years - perhaps because it offers protection against diarrhea. By Josie Clausiusz
  • CF PenPals - Browse through profiles of those with CF interests... Patients, family members, relatives, doctors etc! Find someone to keep in touch with
  • CF Rules OK - Pat has published a book which describes the story of a life with Cystic Fibrosis. This is a very personal and moving story which has sold hundreds of copies world-wide and is highly recommended.
  • CFUSA - Cystic Fibrosis USA - The goal of CFUSA is to prevent and cure Cystic Fibrosis and to improve the lives of all those who are touched by this disease.
  • Cyber Campus - The Cyber Campus is a computer course aiming to empower and educate people with Cystic Fibrosis. From the Cystic Fibrosis Association of Ireland (CFAI).
  • Cybersessions - Cystic Fibrosis Conference
  • Cystic Fibrosis - CF is a chronic, progressive, and frequently fatal genetic disease of the body's mucus glands. An in depth look at this disease by The Daily Apple.
  • Cystic Fibrosis Awareness Page
  • Cystic Fibrosis Community - Active message board and chat for caregivers and individuals with Cystic Fibrosis. Share support, give advice, offer coping skills. Moderated by volunteers.
  • Cystic Fibrosis Foundation
  • Cystic Fibrosis Genetic Testing
  • Cystic Fibrosis Health FactSheet - Concise factsheet on causes,symtoms and treatment of cystic fibrosis, this factsheet can also be downloaded in Acrobat format
  • Cystic Fibrosis Help - Provides information on what you can do to help the children with Cystic Fibrosis, please do your part and help.
  • Cystic Fibrosis I.Q. Test - Test what you know about cystic fibrosis.
  • Cystic Fibrosis in the Ukraine
  • Cystic Fibrosis Index of On-Line Resources - The CysticFibrosis Index of On-Line Resources is intended to be an exhaustive guide toAll on-line web pages, news groups, FAQ's, chat rooms, and mailing listsassociated with Cystic Fibrosis.
  • Cystic Fibrosis Info-Zone - Directory of links to medical information.
  • Cystic Fibrosis Links - Cystic Fibrosis Links and Information
  • Cystic Fibrosis Message Board - Forum for support, and to discuss information, concerns, and treatment options.
  • Cystic Fibrosis Mutation Data Base - The Cystic Fibrosis mutation database.
  • Cystic Fibrosis Research Inc. - News about CF research. Site also has a newsletter available.
  • Cystic Fibrosis Resource Center - Directory about Cystic Fibrosis, including books, medical news, articles and information, links, message boards.
  • Cystic Fibrosis Support @ Excite - Community forum for friends, family and those who deal with Cystic Fibrosis
  • CysticFibrosis Support Group Forums - Select the forum that suits your needs and talk with other people who have similar needs, hopes and frustrations.
  • Dan's CF Web Site - Details the author's personal experiences with cystic fibrosis.
  • FAQ on Cystic Fibrosis - CYSTIC-L Community Page
  • Future Force - Future Force - An Irish Publication for the CF Community around the world. If you need more information on CF Future Force has it.
  • Gentiva's Cystic Fibrosis Information Center - Gentiva Health Services’ Cystic Fibrosis Information Center is designed to help you understand cystic fibrosis (CF) and to provide valuable information regarding treatment programs, services and literature.
  • Hanne´s Personal Danish Cystic Fibrosis Site - Personal homepage in Danish with information about Cystic Fibrosis
  • HealthLink USA - A wide rage of helpful Cystic Fibrosis information concerning treatment, prevention, diagnosis, email groups, support groups, personal stories and much more.
  • Heart To Heart - A Cystic Fibrosis Webpage - Welcome to Heart 2 Heart ONLINE - your CF support group for the Alabama community. Visit our new site online today!
  • Help4Cysticfibrosis: Cystic Fibrosis Information - Cystic Fibrosis Information Treatments, Symptoms, and Self Help Resources for Coping with Cystic Fibrosis
  • How To Handle Living with Cystic Fibrosis
  • IACFA- International Association of Cystic Fibrosis Adults - International association with the purpose of improving the quality of life of all adults with cystic fibrosis, by identifying common problems, enhancing the exchange of information and raising the awareness of the medical profession.
  • Living with Cystic Fibrosis - Living with Cystic Fibrosis in every day life. Also free e-mail.
  • NHLBI, Facts About Cystic Fibrosis
  • PulmonologyChannel - Information on cystic fibrosis.
  • Salvay Healthcare Ltd., UK - This site has been produced by Solvay Healthcare Ltd., and is designed to be a useful source of information for cystic fibrosis patients, parents, doctors and other carers.
  • Shannon & Greg's CF Page - Medical as well as personal accounts of what cystic fibrosis is it's effects on the entire family. Many links.
  • The Ortho-McNeil CF Care Website - The CF Care website provides people with cystic fibrosis, family members, and the CF community with quick and easy access to education, information, and breaking stories on the latest treatments and issues related to cystic fibrosis.
  • Victoria Chapter, Canadian Cystic Fibrosis Foundation - The Victoria Chapter, one of 51 Chapters of the Canadian Cystic Fibrosis Foundation, works to provide a brighter future for every person born with cystic fibrosis. It assists in the quest to find a cure or control for the disease.
  • Web of Care - Cystic Fibrosis Community - Virtual community for home caregivers featuring hundreds of articles, animated caregiving skills demonstrations, and a free "Ask an Expert" service. Connect with other CF caregivers through chat rooms, bulletin boards, free e-mail and free home pages!
  • Welcome to the I.C.F.M.A. website - A not-for-profit organization for increasing cystic fibrosis awareness.
  • Yahoo! Health - Cystic Fibrosis

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