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DYSTONIA

  • Abstracts: Genetics of Dystonia - Idiopathic torsion dystonia, by Laurie Ozelius, Molecular Neurogenetics Unit, Massachusetts General Hospital, Charlestown, Ma. 2nd Workshop Neurogenetics in Germany, Munich, October 19-21, 1995.
  • BEBREF Blepharospasm Pages - Initial symptoms, cause and treatment are discussed, and available publications are listed by the Benign Essential Bleparospasm Research Foundation.
  • Benign Essential Blepharospasm - Information, who to contact, where to go to chat with others and links from Family Village.
  • Benign Essential Blepharospasm Research Foundation, Arizona Support Group - Details of group meetings, physician referrals, emotional support and promotion of public awareness.
  • Blepharoplasty - Health Factsheets from BUPA - Concise fact sheet explaining the causes, symptoms and treatment of this disorder. Available for downloading in Adobe Acrobat.
  • Blepharospasm - Treatment of blepharospasm in Lancaster County, USA, by Dr Silbert and Dr Singman.
  • Blepharospasm Support Groups - SupportWorks directory of support groups and other resources in Charlotte, NC addressing blepharospasm.
  • Danish Dystonia Society's Web Site - Information, links, sponsors, some Danish texts.
  • Diplopia After Exposure to Botulinum Toxin - Article about botulinum toxin used to treat blepharospasm and its effects.
  • Dystonia - Personal experiences by Robyn and Kelly struggling with a rare disorder. Site offers information and links to doctors who may be able to help. Support for all who cross the path of this disease specifically mandibular focal dystonia.
  • Dystonia - Healthlink USA - Links to websites with information about dystonia.
  • Dystonia Dialogue - Home page of the Dystonia Medical Research Foundation. Links to pages on all aspects of the movement disorder dystonia (blepharospasm, spasmodic torticollis, spasmodic dysphonia, writer's cramp). French and Spanish versions.
  • Dystonia Medical Research Foundation - Canadian Foundation supporting research, awareness and support related to dystonia.
  • Dystonia On-Line Support Group - Extensive information on this disease as well as a chat room with scheduled chat meeting times.
  • Dystonia, Inc - Information about spasmodic torticollis and dystonia.
  • Dystonias - Information page compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
  • EYELID - Information about blepharitis, blepharoplasty, blepharospasm, botulinum toxin treatment and its side effects.
  • EyeMD Link - An article about blepharospasm, what it is, treatment and testing details.
  • IPL Ready Reference Collection: Dystonia - Dystonia reference.
  • Living with Dystonia from Childhood to Adulthood - Information about dystonia, including personal information and links to dystonia organizations.
  • Medicine Net - A description of dystonia musculorum deformans.
  • NORD - Dystonia - Offers synonyms, a general discussion and further resources.
  • Spasmodic Dysphonia - Patient Information - Information about the voice disorder spasmodic dysphonia. Includes a listing and review of other sites.
  • Steen-Hall Eye Institute - Comprehensive Vision Care Facility - Information about blepharospasm, and details of surgical options at the Institute.
  • The CaF Directory - Dystonia - Information about dystonia from the Contact a Family charity, UK.
  • The Dystonia Society (UK) - UK charity providing information and support for people with dystonia.
  • The Family Village - Dystonia - Information, contacts, chat rooms, links related to dystonia.
  • The Voice Center: Dystonias and Other Movement Disorders - Information about dystonias, from the Voice Center at Eastern Virginia Medical School.
  • UCLA Neurosurgery - An article explaining what dystonia musculorum deformans is, the symptoms, causes and treatment.
  • We Move - Dystonia - Information for Patients - Dystonia: information for patients and families.

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