TOP-LINK UP-LINK DISCUSSION SEARCH INDEX E-MAIL
MARFAN SYNDROME

  • Canadian Marfan Association - Information about Marfan syndrome, articles, events, Marfan patient survey, products.
  • Dr. Chow's Marfan Survey - Research on the pros and cons of heart surgery for people with Marfan Syndrome.
  • Glory's Marfan Syndrome Info Site - A personal page from Glory, includes much Marfan Syndrome information, photos, links, even a Kids Club page, and list for doctors.
  • Marfan Association UK - The support association in the UK for this genetic condition Marfan Syndrome which can affect the heart, eyes and connective tissue.
  • Marfan Syndrome - Bradley Radecki's personal page with information about Marfan Syndrome and how it has affected him.
  • Marfan Syndrome Awareness - This site is designed to provide information about Marfan Syndrome, and related medical problems.
  • Marfan Syndrome, Children's Heart Institute - Dr. Abdallah uses colorful graphics and animated slide shows to help explain Marfan Syndrome in plain language.
  • Marfan Syndrome: Life and Issues - Personal site by which describes the pathology and gives a bit of advice.
  • Marfan's Syndrome - This is a case study of the diagnosis and treatment of a basketball player with Marfan Syndrome.
  • Marfan-List - This is a forum for people interested in Marfan Syndrome.
  • National Marfan Foundation - Providing accurate and timely information about Marfan disorder to patients, family members and physicians.
  • Nutritional and Genes in Marfan Syndrome - Reviews the possible role of nutrition in this syndrome. Other disorders also listed but may be helpful.
  • Slovak Marfan Association - The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.
  • Stanford University Marfan Center - Research, testing and care for Marfan Syndrome and related connective tissue disorders, with a list of FAQs.

    Google