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SPINA BIFIDA

  • Anna Fisher Williamson - Anna's story of Fetal Surgery and Spina Bifida.
  • Arizona Spina Bifida Association - Information and services concerning spina bifida and associated secondary conditions. The ASBA is a local constituency of the SBAA.
  • Association for Spina Bifida and Hydrocephalus - Information about spina bifida, hydrocephalus and related topics.
  • Cassidy Anne's Special Story - Story about a little girl with Spina Bifida.
  • Children with Spina Bifida - Information, links and personal stories. A resource page for parents and professionals.
  • Fetal Surgery - In-utero surgery to close SB lesion in Samuel Armas,a fetus at 21 weeks gestational age.
  • Fetal Surgery for Spina Bifida - Fetal surgery for spina bifida may prevent additional neurological damage and improve brain development.
  • Home of the Baumli's - Our two children: 1 with Spina Bifida and 1 with Down Syndrome.
  • Information On Spina Bifida - Extensive information about spina bifida, complete with diagrams and links.
  • Julia's Journey - Support and information for families who have children or loved ones with the disabling birth defect spina bifida and hydrocephalus
  • Kranny's World - Student with spina bifida, disability-related sites, mostly Spina Bifida links.
  • Living with Spina Bifida - A personal outlook on spina bifida. Stephanie's story.
  • Living with Spina Bifida and Diabetes - Two brothers living with Spina Bifida and Diabetes.
  • Nicholas' Medical Miracle - Read about one of the first babies in the world to undergo fetal surgery to correct spina bifida in utero. See how Nicholas has fared since birth and obtain information of the surgical procedure that helped him reduce the dramatic effects of this disease.
  • Planet Zachary - Meet Zachary and learn a little about Spina Bifida.
  • Rotherham Home Page - Story of my son who has spina bifida and is fetal surgery number 56.
  • SANDI Project - Five year study of the causes and effects of spina bifida. Kids of all ages can participate and help researchers in Houston, TX and Toronto, Canada.
  • Sarah Smile's World - A family site about raising a child with spina bifida. Includes information, links, and our personal story about our daughter Sarah.
  • SBH Queensland - Community organization site with information on spina bifida, hydrocephalus, occulta, education.
  • Spina Bifida - One family journey with Spina Bifida.
  • Spina Bifida and Hydrocephalus Association of Nova Scotia - Information about these conditions, and a calendar of events scheduled by the Association.
  • Spina Bifida and Hydrocephalus Association of Ontario - Information, resources, support.
  • Spina Bifida Association of America - Promotes prevention of spina bifida and addresses needs of people affected.
  • Spina Bifida Association of Connecticut - Information about spina bifida.
  • Spina Bifida Information - Information page compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
  • Spina Bifida: A Handbook for Life - A handbook for parents, family and friends of those with Spina Bifida.
  • Susete's Home Page - Mother of Andrew, a child with spina bifida. Includes links to other SB related pages.
  • T.J.'s Page - Story about living with a disability due to Spina Bifida and Hydrocephalus. It includes a photo album, informative links, and his in-depth story.
  • Vanderbilt University Medical Center - Information about fetal surgery for the repair of spina bifida or myelomeningocele. Includes news, research, statistics, discussion, links and patient tips.

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