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SPINAL MUSCULAR ATROPHY

  • Andrew's Buddies - national nonprofit organization dedicated to advancing research and public awareness of spinal muscular atrophy.
  • Believe in Miracles - information on twin girls, Cassidy and Skylar Swanson, who have Spinal Muscular Atrophy.
  • Brionni Trust - dedicated to the charitable activities of an organisation supporting children with terminal illnesses in Scotland.
  • Cunning Family - offers personal experience and links to resources on Spinal Muscular Atrophy.
  • Families of SMA (Spinal Muscular Atrophy) - International support group and resource center for this disease, includes current research.
  • Families of Spinal Muscular Atrophy Canada - Canadian charity supports research into a cure for SMA.
  • FightSMA - Web site promoting public awareness for spinal muscular atrophy.
  • GeneClinics SMA Information Page - This page provides a very good overview of SMA, its genetics, clinical presentation and testing. It is written by one of the nation's leading experts in SMA research and genetic testing.
  • Ilsa's SMA Resources - A detailed description, news and links with information about Spinal Muscular Atrophy. A personal story of a baby, Ilsa.
  • Melissa's Place - personal experience of living with Spinal Muscular Atrophy. Plus links to disability related sites.
  • Michelle's Place - Werdnig-Hoffman, SMA Type I, #1 Genetic killer of children under the age of 2.
  • SMA Angels Support Site - A place for people to find support for Spinal Muscular Atrophy (SMA) / Werdnig-Hoffman.
  • SMA2 Ian Paul - I am two years old and I have SMA2.
  • Spinal Muscular Atrophy : Theo's story - We have lost our son Theo through SMA. This site is bilingual English/French.
  • Spinal Muscular Atrophy [familyinternet.com]
  • Spinal Muscular Atrophy [mda.org.au]
  • Spinal Muscular Atrophy [vanderbilt.edu]
  • Spinal Muscular Atrophy [wisc.edu]
  • Theo's Story with SMA - A personal story of a family with a son Theo, suffering from Spinal Muscular Atrophy. Site also in French.
  • Tori's Buddies - Canadian Chapter of Andrew's Buddies, fighting Spinal Muscular Atrophy SMA.
  • Washington University of St. Louis: Neuromuscular - Provides detailed medical/genetic information for a variety of neuromuscular disorders. Primarily intended for medical professionals and is very technical.

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